All the Best to You!
Lon

I hope this will be another resource to not only provide some reading support for kids with disabilities and remedial issues, but also fun for parents to use as a resource for safe content for kids.

All the Best to You!
Lon

Above: Kathy Howard, from the OT/PT department, shares how to balance on a wobble board and pass a bounce ball from left to right. It's harder than it sounds!
Here, I am handing 2 students a ribbon switch to try. They are filling out their interview sheets.
All the best to You!

I read an interesting blog article today that fits with the topic of parent advocacy I have been sharing lately. The blog can be found at wickedlocal.com under the education news section. The link is HERE. To summarize the issue, a Hispanic mother is concerned about the slow process in aqquiring one on one assistance for her daughter who has West Syndrome. West syndrome, also known as infantile spasms, is a rare and serious form of epilepsy in infants. The mother has limited English proficiency and is trying to advocate for her daughter in spite of difficulties getting translations and proper support for communication.
This is the third principle in a series I have been sharing on parent advocacy. Some of this comes from my past 25 years in education and some from interviews with parents that I meet through work, conferences, parent meetings, day care, my son's school, etc. I have been honored with the pleasure of meeting some wonderful parent advocates and our principle this time is one that I have observed being practiced by these folks more than ever being spoken.The wonderful thing about these kind of advocates is that through their efforts, they have earned the right to share in the processes at their schools. They have the right to be in the process anyway, whether they know it or not, but might be permitted by the school begrudgingly because of poor interpersonal relationships. If done right, the relationships at school can blossom so that the parent is seen as a positive influence in the process and their opinions are respected.
How do you think you are perceived by the staff at your child's school? Are you an antagonist and an interrogator when it comes to what is happening at school for your child's services? What could you do to improve the situation? What areas above do you do well? What areas could you possibly improve in?
Now I know there are those of you out there that are saying, "Yes, this might be true, but you don't know what I go through. I have to deal with a principal that doesn't get it when it comes to IDEA and the rights of disabled and special needs children." You might say, "The staff at my child's school always get their defenses up when I come around and I can't get through to them." You could also be one saying, "I have been dealing with incompetency throughout the whole school career of my child's life. I have been patient but I am about to the point where all I know to do is use the "S" word...sue."
I am not an attorney and I am not about to start giving legal advice. I realize there are situations where being nice isn't enough. Still...I would encourage you to take a deep breath and look at the principles above. Compare them to your realtionship with your school. Look at where you do well and where you could do better. Putting some effort into these principles can go a long way to bring positive results that will be a win/win situation for everyone.I hope you are enjoying this series. If you know of anyone that might benefit from this post or my blog in general, please pass it on.
All the best to you!

Has more Star Trek technology become a reality? I have been working on a "No Limits to Learning" AT Resource Bundle. It will have a section on the key elements and basics of assistive technology in layman terms for parents. It will also have video tutorials to walk you through the steps to make 21 "do it yourself" projects you can create for free if you have a Windows computer and MS Office or Open Office (which is free). All the other software is free off the Internet too. I was working on the introduction and thought I had to share some of it today. I hope you enjoy this little preview:
"There is no way any one person can "know it all" about AT. The world is becoming more and more specialized. We have specialized services within specialized niches that are in specialized markets of specialized companies. It can get pretty crazy. I have heard predictions that there will come a time when a person cannot be an AT specialist anymore. They will have to be an AAC specialist or a curriculum support specialist - all within the parameters of AT.
I say this to let you know that if you are a parent, you should be comfortable in relaxing and just getting an overview of the services and equipment your child may need. Be prepared to say "I don't know but I can find out." That is my biggest phrase. I have learned how to find a needle in a haystack on the Internet when it comes to AT. I spend about 30% of my work time online researching equipment, treatment, therapy or definitions and descriptions of medical disorders. Be ready to see the Internet as your best friend. There is so much information out there it is staggering.
This whole project started when I began to hear AT specialists all over clamoring for a website that was a "one stop" place to find resources, vendors, experts, tutorials, federal information, forms, etc.
Most people hate to waste time searching for information. They want it done for them. Since I am on the computer a lot anyway, I thought, "Why not?" So this is my attempt at giving people the basics. I don't even pretend to think or bluff you into thinking this is all there is. It is far from it. If I were to get into occupational and physical therapy supports, new treatment for seizures and ADHD with neurofeedback for children using computer games and slot car race tracks, simulating virtual reality on the TV with a Wii, and so on, we would be here for the next 2 years - and by then 70% of what I shared would be obsolete and new technologies would take over.
Technology also has a way of skidding from science fiction's past into the present like Michael J Fox's Delorean in "Back to the Future". Remember those sliding doors on Star Trek on the U.S.S. Enterprise? Well we take them for granted now. And everytime I see someone flip open a cell phone and talk to someone, I expect to hear them say "Beam me up Scotty." I had a real wide-eyed moment today and I have to share it with you.
Today I watched a doctor wave a Dr. McCoy/Star Trek-type "tricorder" over my son's chest and re-align the electrical impulses that were out of sync so his respiratory infection could heal. Seriously - this is for real. He did the treatment until the levels on the front showed it had re-calibrated. "What is that?!" I asked. Just when you think you are getting a handle on things something new shoots up.
I imagine by the time this is out in circulation, I'll be writing a second edition. That's OK. As long as you don't expect to ever catch up, you can relax and find the things that work. That is what this whole thing is about anyway. Finding out what works to support kids."
So that is my two-cents worth tonight and it will probably find its way into some article I will be publishing here soon. Thanks for making me accountable to keep writing and sharing. It is more and more one of the things in my day I look forward to.
Just to let you know, I have another installment on my parent advocacy series coming and the podcast of teens sharing about disabilities coming along too. I hope you take care and keep checking back. Also, refer this on to others that might find it useful or entertaining.
All the best to you!
Lon
Image Credit: http://www.neweyestudio.com/stnr3.htm
I am so glad to have you back for Principle 2 in this series on Parent Advocacy. The first principle was research, studying, and reading up to keep informed on new developments and support. Today's principle, number two, concerns fostering positive relationships.
For those of you that have been following this blog and listened to the first podcast, you know that I spent yesterday at a career showcase for middle school students. I said I would be recording the kids as they told me about their experience with other kids who have disabilities, what they know about assistive technology and their reactions. It was a fun day and I have some great sound clips and pictures to share. I am working on the editing for that podcast and hope to have it up next week. I have applied to itunes to have my podcast there where folks can subscribe as well as get it direct here. I will let you know when it is up on itunes for subscription. You will be able to get the podcasts there and put them on your ipod. If you don't know how to do it, I will give you directions when the time comes."Sadly, Daniel passed away four years ago last month. We miss him terribly and there will always be a massive hole in our lives. How do you get over the death of a child? However, the snowball of enthusiasm and interest, which he created in me, - interest in helping to solve the problems many children face, rolls on. Using all of the knowledge, which my son passed to me,(despite all my qualifications and research experience, he remains my most astute tutor), I am in the process of setting up a child development consultancy called 'Snowdrop.' It is in its infancy, but it aims to take all the knowledge and experience amassed over the years and to utilise it for the benefit of
children and families like ourselves."


Has anybody used something like this? It is a snap-on telescopic screen magnifier for a computer monitor. Since students do standardized tests on an online testing program that doesn't allow external programs to run over it (risks of cheating), visually disabled students can't get the help they need with integrated adaptive software. I have heard that the test can be printed off and the font enlarged, but it becomes an adaptation as well as an accomodation. This causes schools to be penalized on their school improvement report card for average yearly progress (correct me if I am mistaken).
I am in Portland at the Oregon state-wide assistive technology meeting, February 11th and 12th. Monday, we will be presenting updates on our different regions and services. There will be a presentation on NIMAS the new standard in digital text and we will also look at the OTAP (Oregon Technology Access Program) website. It is on my sidebar under important links.
I am beginning to find that one of the pleasures of writing on my blogs is the great email I get. I am beginning to hear from people through my email. It is so exciting to think that we can reach out to each other and support what others are doing. If you have a blog on children, disabilities and related services please let me know. You can email me if you would like. I will be sharing the information I am getting from those emails from time to time and making a "My Blog Family" listing so that you can visit their blogs and sites too. 


Electroplankton is a new game on Nintendo DS. It was designed by Toshio Iwai, an interactive media artist from Japan. This is not a game, it is more an interactive and manipulative music and art activity. There isn't any objective to accomplish really, just exploratory play with color and sound. Children with high interest in in music and art could find this to be therapeutic and a behavior reward too. The drawback is that it is a Nintendo DS game rather than a computer game. Go to the link to see the beautiful blend of color in the Flash enabled site. Watch the video below to see it in action and a review.
Yesterday Was "Eyes and Ears" Day: 
Oregon Technology Access Project